Research groups
Colleges
Dr. Alison Kay
Social scientist specialising in health and genomics
Biomedical developments and health interventions impact patients and practitioners in ways that are not always foreseen or appreciated. I am an interdisciplinary researcher applying largely qualitative methods to investigate these implications.
I am a co-investigator on the iPREGCARE study (NIHR207257), investigating the implications of personalised pre-conception recurrence risk information for the parents of children with genetic conditions (MRC Weatherall Institute of Molecular Medicine).
I am also a researcher on the qualitative evaluation of the Children's Surgery Outcome Reporting project (CSOR) (Nuffield Department of Primary Care Health Sciences).
In 2023, I was awarded a three-year JRF (Junior Research Fellowship) with the Centre for Personalised Medicine (CPM). An example of my engagement during this time is the 'Making it Personal' project - utilising theatre to spark conversations on the implications of genomic risk information (PCER Fund 2024-2025).
Recent publications
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Making it Personal - play script
Report
Kay A. et al, (2025), 0 - 27
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Professionals' views on providing personalized recurrence risks for de novo mutations: Implications for genetic counseling
Journal article
Kay AC. et al, (2024), Journal of Genetic Counseling
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Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: a qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners.
Journal article
Kay AC. et al, (2023), J Med Genet, 60, 925 - 931
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Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.
Journal article
Kay AC. and Taverner NV., (2023), J Community Genet, 14, 149 - 162
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Adoptees’ views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK
Journal article
Kay A. and Taverner N., (2022), Journal of Community Genetics
