Research groups
Colleges
Dr. Alison Kay
Health experiences researcher
- Primary Investigator - Making it personal: using theatre to explore the implications of genomics for pregnancy (University of Oxford PCER Fund)
- Co-investigator - iPREGCARE study: implications of genomic reproductive recurrence risk assessment for de novo mutations (NIHR; PI: Prof. Anne Goriely)
- Research Fellow (JRF), Oxford Centre for Personalised Medicine & St. Anne's College
Research areas: genetics, genomics & genetic counselling; psychology; social science approaches to healthcare and medicine; qualitative research; PPIE.
Ali brings an interdisciplinary approach to research into health experiences, exploring how scientific developments and new interventions impact patients and practitioners. She has a particular interest in how new genetic insights reshape risk communication and impact decision-making for practitioners and recipients of the information. In addition to her experience in postdoctoral roles in different disciplines, Ali is able to draw on ten years' experience in patient/public advocacy to develop and steer innovative public involvement and engagement with research.
Patient expert training – EURORDIS (2021); EUPATI Fellowship (2024–2025).
Doctorate (DPhil). Nuffield College, Oxford
MSc: Genetic & Genomic Counselling, Cardiff University; MSc Psychology, UCLan
MA (Hons) University of Edinburgh; PGCE (DMU)
Recent publications
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Professionals' views on providing personalized recurrence risks for de novo mutations: Implications for genetic counseling
Journal article
Kay AC. et al, (2024), Journal of Genetic Counseling
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Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: a qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners.
Journal article
Kay AC. et al, (2023), J Med Genet, 60, 925 - 931
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Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.
Journal article
Kay AC. and Taverner NV., (2023), J Community Genet, 14, 149 - 162