EVAREST Privacy Notice
How will we handle your information?
University of Oxford is the sponsor for this study based in the United Kingdom. We will be using information from you and your medical records in order to undertake this study and will act as the data controller for this study. This means that we are responsible for looking after your information and using it properly. University of Oxford will keep identifiable information about you for 12 months after the study has finished. This excludes research documents with personal information, such as consent forms, which will be held for up to 10 years after the end of the study.
Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
You can find out more about how we use your information by emailing firstname.lastname@example.org or calling 01865 5 72841.
Your local NHS site will use your name, NHS number, Medical Record Number (MRN) and contact details to contact you about the research study, and make sure that relevant information about the study is recorded for your care, and to oversee the quality of the study. Individuals from University of Oxford and other regulatory organisations may look at your medical and research records to check the accuracy of the research study. Your local NHS site will pass these details to University of Oxford along with the information collected from you and your medical records. The only people in University of Oxford who will have access to information that identifies you will be people who need to contact you for the purpose of study conduct and to audit the data collection process. The people who analyse the information will not be able to identify you and will not be able to find out your name, NHS number, MRN or contact details.
Your local NHS site will keep identifiable information about you from this study in accordance with local policies for medical notes retention..