Research groups
Colleges
Dr. Alison Kay
Health experiences researcher
Biomedical developments and health interventions impact patients and practitioners in ways that are not always foreseen or appreciated. I am an interdisciplinary researcher applying largely qualitative methods to investigate these implications.
I am a co-investigator on the iPREGCARE study (NIHR207257), investigating the implications of personalised pre-conception recurrence risk information for the parents of children with genetic conditions (MRC Weatherall Institute of Molecular Medicine).
I am also a researcher on the qualitative evaluation of the Children's Surgery Outcome Reporting project (CSOR) (Nuffield Department of Primary Care Health Sciences).
In 2023, I was awarded a three-year JRF (Junior Research Fellowship) with the Centre for Personalised Medicine (CPM). An example of my engagement during this time is the 'Making it Personal' project - utilising theatre to spark conversations on the implications of genomic risk information (PCER Fund 2024-2025).
Recent publications
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Making it Personal - play script
Report
Kay A. et al, (2025), 0 - 27
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Professionals' views on providing personalized recurrence risks for de novo mutations: Implications for genetic counseling
Journal article
Kay AC. et al, (2024), Journal of Genetic Counseling
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Providing recurrence risk counselling for parents after diagnosis of a serious genetic condition caused by an apparently de novo mutation in their child: a qualitative investigation of the PREGCARE strategy with UK clinical genetics practitioners.
Journal article
Kay AC. et al, (2023), J Med Genet, 60, 925 - 931
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Adoptees' views and experiences of direct-to-consumer (DTC) genomic testing: an exploratory interview study from the UK.
Journal article
Kay AC. and Taverner NV., (2023), J Community Genet, 14, 149 - 162