Patient and Public Involvement and Engagement
Patient and public involvement and engagement (PPIE) is central to our research.
It improves our research and motivates us to work even harder to find better treatments for patients with blood cancer and other blood disorders. We value our partnerships with patients, carers and members of the public. You can read more about Public and Patient Involvement here.
You could join us!
We have two friendly ways to connect, share ideas and work together. You don’t need any qualifications or previous experience to join, just a willingness to share your thoughts and work with others.
Activities vary from voting on ideas, commenting on documents, taking part in online meetings or attending events. You will always know what to expect (e.g. how long it will take, what support is available and payments offered) – so you can decide if it is right for you. Watch our video to see some of our members describing their reasons for getting involved.
Patient and Public Advisory Mailing Group
This is a network of patients, carers and members of the public who receive a regular newsletter (by email or post). This provides updates about the research and opportunities to get involved. Most activities are short tasks that can be done from the comfort of your home. However, there are opportunities to meet the researchers too! Members can get involved as much, or as little, as they want.
Patient and Public Strategy Group
This group includes patients, carers and members of the public who meet regularly. They help the researchers to make important decisions and provide ongoing advice. They also shape how we do PPIE. Members generally meet online, but occasionally attend events in Birmingham or Oxford.
Interested? Have questions?
Contact Karen and Lee to find out more. Our email is email@example.com