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Cutaneous lymphoproliferative diseases in childhood are rare and they are clinically and pathologically heterogeneous, which makes their diagnosis challenging. Although there is limited long-term data and guidance on management, evidence suggests these to be different conditions from cutaneous lymphoma in adults, highlighting the need for age-appropriate patient information. We present clinical outcomes for our paediatric cohort of five patients with mycosis fungoides, emphasizing that despite diagnostic delays, mycosis fungoides in this age group tends to yield a good prognosis. It remains uncommon to provide clinical expertise together with psychological support in a dermatology paediatric service. Here, we provide our experience in offering this combined service. In conjunction with these patients, we have co-produced an accessible patient information leaflet targeted at a younger audience for support and to clarify potential misconceptions from a diagnosis of cutaneous lymphoma.

Original publication

DOI

10.1093/ced/llad457

Type

Journal article

Journal

Clin Exp Dermatol

Publication Date

23/04/2024

Volume

49

Pages

497 - 501

Keywords

Adolescent, Child, Female, Humans, Male, Age Factors, Mycosis Fungoides, Patient Education as Topic, Skin Neoplasms, Young Adult